What is Purple Day? The Global Day of Epilepsy Awareness!!
Purple Day was started by then 8-year-old epilepsy sufferer Cassidy Megan in 2008. Her initial idea was to “get people talking” about epilepsy so they could be better informed, more educated, and thus, less likely to fall prey to the negative myths about epilepsy. She also sought to bring people with epilepsy together, to help them feel connected to each other, to their community, and...
Read More2012 National Walk for Epilepsy
As you may have heard, the annual National Walk for Epilepsy is fast approaching! For those of you who have not participated in the past, this event is the only national walk to raise awareness, benefit research, and support services and activities dedicated to help improve the lives of those living with epilepsy. The event is held annually and consists of a family-oriented, non-competitive,...
Read MoreNew Year’s Resolutions and Epilepsy: Where They Meet
As the end of each year approaches, many of us spend time thinking about the events that took place during the year, the great experiences we have had and the joys we have experienced. We also dedicate thought to those aspects of our lives that are not as fulfilling or productive as we wish they were and we begin to make plans for change in the coming year. Some people make resolutions to...
Read MoreWhat if I cannot afford my epilepsy medication?
In these tough economic times, everyone is having to make some cut backs. For some, that may mean skipping an evening out a restaurant, or not buying that new pair of shoes. But what if that means your epilepsy medications? One medication alone can be quite costly, and often time people are prescribed more than one, which means the cost can really add up. An important component of seizure...
Read MoreIndividualized Education Program (IEP) and Section 504
If your child has been evaluated by his/her school and classified as “disabled” there are many aspects of educational and civic law that you must become familiar with. Note, if your child has not yet been evaluated by their school and you believe they should be, please refer to our previous blog post: Educational Assessment of Your Child, to learn how to go about requesting this evaluation...
Read MoreEducational Assessment of Your Child
If your child has epilepsy, it’s likely that you have a lot of questions and concerns about how this condition may or may not affect their academic development, and about what you can do to ensure your child is learning to his or her highest potential. Although not all children diagnosed with epilepsy will experience learning difficulties, some may. If they do, this may be a difficult...
Read MoreWho is my best advocate?
YOU are!!! What is self-advocacy? The term “self-advocacy” refers to the idea or movement that people with illness and/or conditions, have the right to take control of their own lives, including being in charge of their own care in the medical system. It is about people speaking up for themselves. It acknowledges that although we all need help and support form others at times, as...
Read MoreAbout this Blog
So, you’ve been diagnosed with epilepsy. Perhaps this is a new diagnosis; perhaps you’ve been living with this condition for years. Either way, chances are you have many questions and concerns about how this condition will affect your life in general, not just your health. Your epileptologist (physician who specialized in epilepsy) or neurologist can certainly help you decide on medical...
Read MoreAbout Us
Epilepsy Life Links (ELL) is the advocacy arm of the Northeast Regional Epilepsy Group (NEREG). Epilepsy Life Links provides a comprehensive array of supports and life-improvement opportunities for persons diagnosed with epilepsy and seizure disorders.
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