Navigating Epilepsy: The Road Ahead

About this Blog

aboutSo, you’ve been diagnosed with epilepsy. Perhaps this is a new diagnosis; perhaps you’ve been living with this condition for years. Either way, chances are you have many questions and concerns about how this condition will affect your life in general, not just your health.

Your epileptologist (physician who specialized in epilepsy) or neurologist can certainly help you decide on medical treatments for this condition, but often times they are not able to help you navigate the many other daily aspects of living with this condition. This is where this blog comes in. The purpose of this blog is to help you navigate epilepsy, the legal, medical, and educational systems as they relate to this condition, and the services out there which you may be entitled to. There is much to learn about and I hope that this blog will help address some of your questions, provide you with important and useful information, and also provide a space for discussion and commentary on each topic.

Although, these are just a few of many possible examples, here is a list of topics that will be covered in this blog:

Epilepsy and the Law:
o Can you drive if you’ve been diagnosed with epilepsy?
o Missing work and your rights under the Americans with Disabilities Act.
o Family Medical Leave Act- for when you or your loved one needs time off from work to deal with a medical condition.

Social Services and Epilepsy:
o What are some social services available for people with epilepsy?
o What transportation services are available to you if you can’t drive? Can you obtain transportation for your medical appointments?
o Epilepsy and social security disability: Who qualifies, how to apply, what to expect, and where to get help.
o What to do if you cannot afford your epilepsy medications.

Epilepsy in Your Everyday Life:
o What should you do if you’re loved on has a seizure?
o What your loved ones should know about your seizures and what they should (and shouldn’t ) do if you have one.
o Where can you obtain social support?
o The power of self-advocacy in managing your epilepsy.
o The importance of being part of a community, and how you can go about locating one.
o Wellness and epilepsy- how to ensure your sleep, diet, and exercise habits are helping you live a healthier life with epilepsy.
o The importance of joining an epilepsy support group.
o When epilepsy impacts your mood, what you need to know and where you get help.
o Epilepsy and anxiety and depression.

Epilepsy and School:
o Are you eligible for special services/accommodations at school?
o Can you request that your child’s teacher obtain training in epilepsy first response?
o How to navigate school IEP meetings.
o Your right to request a special educational evaluation of your child.

Epilepsy Education and Awareness
o Why do we walk to support epilepsy?
o What are patient education conferences and should you attend?
o Where can you obtain the latest news on upcoming epilepsy treatments?

So, the topics are varied, and terrain is expansive. But, like with many other aspects of life, education, awareness, and a proactive attitude can mean the difference between floating along and trailblazing your life. I invite you to join me in this journey as we seek to conquer the battles, big and small, that lie in this path called epilepsy.

5 Responses to “About this Blog”

  1. sounds informative- thanks

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  4. Good blog with some interesting information. I will be back.

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