Navigating Epilepsy: The Road Ahead

New Year’s Resolutions and Epilepsy: Where They Meet

resolutions

As the end of each year approaches, many of us spend time thinking about the events that took place during the year, the great experiences we have had and the joys we have experienced.  We also dedicate thought to those aspects of our lives that are not as fulfilling or productive as we wish they were and we begin to make plans for change in the coming year.  Some people make resolutions to live healthier lives, for example to quit smoking, exercise more often, and lose weight, while others make resolutions that are influenced by the presence of other’s in their lives, such as vowing to spend more time with their children, enjoy their families more, or even be friendlier to those around them.

Whatever your particular resolution might be, it most likely will center on improving either your quality of life, or the quality of life of those you care for.  And as yet another new year begins, I would like to invite you to join me in an effort to extend this year’s New Year’s Resolutions to improve the lives of people with epilepsy, whether we know them personally or not.  Perhaps you yourself have epilepsy; perhaps you have a friend or family member with epilepsy; perhaps there is another reason why this topic is close to your heart.  Regardless of the reason that brought you to this community to begin with, I invite you to make this community a priority in your life this year.

In hopes of getting your creative juices flowing and your inspiration in full-throttle, I’ve created a list of some epilepsy related activities happening in the first few months of this year.  Perhaps one (or more!) of them can become part of your resolution this year.  Certainly by doing so, you will bring greater value and inspiration to your life, and perhaps you will even inspire those around you to commit themselves to a cause.  Together, we will all make a difference.

Laughing for the Cure Comedy Night and Silent Auction– Join the Epilepsy Foundation of Colorado on January 7, 2012 in this fun event aimed to raise funds for research and community projects. For more info: http://www.epilepsycolorado.org/index.php?s=10823

Central Ohio Stroll for Epilepsy– One of the first events of the year, join the Stroll for Epilepsy in Columbus Ohio on January 12, 2012and help raise funds for research and community programs. For more info: http://columbusfoundation.org/events/event/stroll-for-epilepsy-2/

Epilepsy Association 7th Annual Winter Walk for Epilepsy– Join the Epilepsy Association on Saturday January 21, 2012 in Cleveland Ohio and help them reach their goal of raising $75,000. For more info: http://www.epilepsyinfo.org/Events/WinterWalk.shtml

UC Irvine 7th Annual Epilepsy Symposium– On January 21, 2012, the University of California at Irvine will be hosting an education symposium.  Education yourself so you can better serve your community and be a source of information for those around you.  Remember that stigma can only be eliminated through education and awareness! For more info: http://www.epilepsysupportnet.org/html/events.html

Sharon’s Ride/Run/Walk for Epilepsy in Honolulu, HI– Leave your winter blues behind and head to beaches of Hawaii to join this team of walkers on January 29, 2012. For more info: http://www.active.com/running/honolulu-hi/sharons-riderunwalk-for-epilepsy-2012

1st Annual Vero Beach Walk The Talk for Epilepsy, Vero Beach, Florida– Join this group of activists as they embark on the first ever Vero Beach walk for epilepsy.  Event takes place on February 11, 2012and is hosted by the Epilepsy Foundation of Florida. For more info: http://epilepsy.kintera.org/faf/home/default.asp?ievent=1006767

Brain Storm Summit – A Regional Conference to End Epilepsy– An educational conference hosted by the Epilepsy Foundation of Greater Los Angeles, scheduled for February 25, 2012 (English) and February 26, 2012(Spanish). Conference will host patients, family members, and caregivers, as well as presenters and key note speakers. Bring yourself, your family, your friends, and anyone else who would like to learn more about epilepsy. For more info:  http://www.end-epilepsy.org/api/Index.cfm/cms.page/i/4174/Upcoming-Events/

Confections in Chocolate This annual fundraising gala, hosted by the Epilepsy Foundation of Northeast New York, “Confections in Chocolate” will be held on Saturday, March 10, 2012, at the Wolferts Roost Country Club in Albany.  This year’s theme is “The Senior Prom!”  We will be celebrating the music and styles over the years.  It could be the prom you went to, the prom you wish you went to, or the prom you wish you never went to and want to do over!  If you come with your original prom date, you will be part of our “Prom Court”! For more info: http://old.epilepsyfoundation.org/local/efneny/Chocolate2011.cfm

End Epilepsy Team at Honda LA Marathon & 5K– Join the Epilepsy Foundation of Greater Los Angeles in this walk and help them raise funds for community projects, events, and epilepsy research.  The walk will take place on two days, March 17, 2012 will be a 5K event, while March 18th, 2012will be a full-on marathon for those hard-core runners! For more info:  http://www.end-epilepsy.org/api/Index.cfm/cms.page/i/4174/Upcoming-Events

National Walk for Epilepsy in Washington DC– The largest epilepsy walk in the country, it is held annually on the Capitol Mall in Washington DC.  This year, the walk will take place on Saturday, March 23, 2012.  You can walk, join a team, donate, or even volunteer to help with this great cause. For more info: http://giving.epilepsyfoundation.org/site/TR?fr_id=1920&pg=entry&CFID=1508071&CFTOKEN=48617224

Gainesville Walk The Talk for Epilepsy– Hosted by the Epilepsy Foundation of Florida and scheduled for March 24, 2012. For more info: http://epilepsy.kintera.org/faf/home/default.asp?ievent=1008017

Purple Day – Began in 2008 and was created by then 9 year-old Cassidy Megan.  Currently, it is the world’s largest epilepsy event and counts over 100 countries within their participants.  You can do anything, small to large, to partake in this event.  Organize your friends, family or coworkers and join un on March 26, 2012. For more info: http://epilepsygroup.com/news_patients_providers6-20-2-73/purple-day.htm

Jacksonville Walk The Talk for Epilepsy!  Hosted by the Epilepsy Foundation of Florida and scheduled for March 31, 2012.  For more info: http://epilepsy.kintera.org/faf/home/default.asp?ievent=1008081 

Miami Walk The Talk for Epilepsy! Hosted by the Epilepsy Foundation of Florida and scheduled for April 14, 2012. For more info: http://epilepsy.kintera.org/faf/home/default.asp?ievent=1007518

Care and Cure – A Benefit to End Epilepsy in Children– Another great event hosted by the Epilepsy Foundation of Greater LA, the Benefit supports their Care & Cure initiatives to improve access to pediatric epilepsy specialty care and support research. Event will take place in June 2012(date TBA). For more info: http://www.end-epilepsy.org/api/Index.cfm/cms.page/i/4174/Upcoming-Events/

Epilepsy Foundation National Advocacy Project– Join the Epilepsy Foundation in its efforts to secure more funding, support community-based programs, eradicate stigma and discrimination, and protect patient access to medications and treatment.  You can help by signing their petition, following their newsletter, or even sharing your own personal story. For more info:  http://www.epilepsyfoundation.org/getinvolved/advocacy/index.cfm

Get involved in epilepsy research programs– If you are a person living with epilepsy, consider joining a research program.  Research is the means by which new treatments are put to the test so that they can eventually reach thousands of people in need.  Many hospitals and epilepsy clinics run research programs and are frequently looking for volunteer participants; here are a few options to locate a research program near you: http://epilepsygroup.com/news6-36/epilepsy-research-program.htm or http://www.epilepsyfoundation.org/research/participateinresearch/current-open-studies.cfm

Volunteer! Many epilepsy organizations, foundations, and clinics are on the lookout for dedicated volunteers.  Tasks can range from helping them organize events, mail out event fliers, to larger event organization and planning help.  Perhaps you can speak at one of their conferences; share you story and help raise awareness.  Maybe you can mentor someone who is going through some of the struggles you have overcome.  The possibilities are endless and require only your creativity and commitment.  Contact your local epilepsy foundation for possible opportunities, and if you live in the NY, NJ, CT area: http://epilepsylifelinks.com/volunteer.php

 

One Response to “New Year’s Resolutions and Epilepsy: Where They Meet”

  1. Maria C. Restrepo says:

    Good Morning to all:

    My name is Maria Cristina I live in NJ

    I found the Epilepsy Foundation almost year and half ago, its the thing it could had happen to me and my family. You guys ROCK !!!!!!

    I working on a blog where I wanna start creating consciousness to people about our condition as Dr Lacman though me in one of his seminar and i also would love to become a volunteer and get more involve with the Foundation I am a passion photographer and i worked in the Media field industry as a Contesting Promotions Coordinator

    I had worked 4 years for very well known Communications Company and I try so hard to talk about it and they never let me do it. I know there is has to be money involved but i had gone trough out so much since i have the condition. That is the time , my time to do something.

    I am out job right now because of my condition. I had never put out my condition as an obstacle to be where I am right now.

    The Foundation had help so much and they are helping now while i found a job while then I would love to become a Volunteer.

    Thanks a lot for your help and cooperation,

    This website is awesome.

    Maria Restrepo

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