Navigating Epilepsy: The Road Ahead

November 2013 is epilepsy awareness month

leafNovember is National Epilepsy Awareness Month in the USA.  This month provides the epilepsy community with 30 days to shine a light on epilepsy, raise awareness in the general public about epilepsy and seizures, fight stigma and ignorance, raise funds for epilepsy agencies and research, and find a cure.

Did you know that eepilepsy affects about 2 million people in the United States and that delays in correctly diagnosing the condition increases the risk for having more seizures, growing disability, poorer quality of life and, in even death through SUDEP (sudden unexpected death in epilepsy).

National Epilepsy Awareness Month (November) is just one month away and we need to prepare if we are going to get the biggest bang out of all 30 days this year.  We need to be prepared to wear purple clothes and deck out your house and office in purple.  Purple is after all the official color of epilepsy.  We especially need to be prepared to educate all those we can engage in casual conversation.  The easiest way to do this is to have a few important basic facts to share (for example):

1)      Epilepsy is not contagious

2)      Epilepsy first aid does not include putting anything in the person’s mouth or restraining them forcefully

3)      There are many ways in which epilepsy can be treated including medications, diets, and surgeries.

4)      1 out of 10 people will have a seizure in their lifetime.

5)      And you can come up with some other significant facts that you think need disseminating.

 

At the Northeast Regional Epilepsy Group of NY, NJ and CT in November we plan to hold 4 major epilepsy conferences for patients and loved ones that are free and open to all who are interested in attending.  Our doctors will be teaching epilepsy facts, how epilepsy is diagnosed, alternative and complementary treatments for seizures, epilepsy in children and more.  Epilepsy Life Links will be launching its wellness in epilepsy programs for NY and NJ and Dr. Neelima Thakur, epilepsy specialist, will offer a webinar on epilepsy in the elderly.

You are welcome to join in for any of these NY and NJ activities or come up with your own. Just make sure to honor epilepsy in November.

One Response to “November 2013 is epilepsy awareness month”

  1. Alison Pinsley says:

    I am interested in activities in Westchester County.

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