Navigating Epilepsy: The Road Ahead

A genetic condition that can cause epilepsy-Glut1 Deficiency explained by Dr. Firas Taha from the Northeast Regional Epilepsy Group

A genetic condition that can cause epilepsy-Glut1 Deficiency explained by Dr. Firas Taha from the Northeast Regional Epilepsy Group

In this blog post, we are focusing on Glucose transporter type 1 (Glut1) deficiency syndrome.  We sat down with Dr. Firas Taha, pediatric epileptologist at the Northeast Regional Epilepsy Group and asked him to explain this complex disorder to us.  Dr. Taha completed his child neurology residency at the Mayo Clinic Florida and his clinical neurophysiology fellowship at the New York University,...

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Qué Necesitas saber si la Epilepsia ha Tocado tu Vida was just published in Spanish (Español) in response to the needs of the Spanish-speaking epilepsy community

Qué Necesitas saber si la Epilepsia ha Tocado tu Vida was just published in Spanish (Español) in response to the needs of the Spanish-speaking epilepsy community

Reading and understanding a book about epilepsy in English can be tough.  Imagine trying to read about epilepsy in English when you don’t really know English all that well.  Dr. Lancman, medical director of the Northeast Regional Epilepsy Group and epileptologist of 20+ years) who is himself also of Hispanic heritage (Argentina) decided to tackle the project of writing Qué Necesitas saber si...

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November 2013 is epilepsy awareness month

November 2013 is epilepsy awareness month

November is National Epilepsy Awareness Month in the USA.  This month provides the epilepsy community with 30 days to shine a light on epilepsy, raise awareness in the general public about epilepsy and seizures, fight stigma and ignorance, raise funds for epilepsy agencies and research, and find a cure. Did you know that eepilepsy affects about 2 million people in the United States and that...

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Purple Pumpkin Project for Epilepsy 2013

Purple Pumpkin Project for Epilepsy 2013

Last year, loving father and epilepsy advocate, Ron Lamontagne, came up with a small local idea in Connecticut when brainstorming on how to get people to talk more about epilepsy.  Little did he know that in just a few months, this initiative would turn into a massive movement that spread all over the US.  The nation was rapidly populated with purple pumpkins of all sizes, shapes, materials and...

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Epileptic or person with epilepsy: Does it matter?

Epileptic or person with epilepsy: Does it matter?

In Shakespeare’s Romeo and Juliette, Juliette claimed that names and words don’t really matter when she stated: “What’s in a name? That which we call a rose by any other name would smell as sweet…” But social scientists have actually determined that what we call something can have powerful effects and these effects can sometimes be harmful. For example, calling a child “dumb,”...

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